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The California Joint Replacement Registry (CJRR) is a longitudinal database for total-hip and total-knee replacements performed in California. The goals of the registry are to support device surveillance, quality measurement, and effectiveness research. The registry will collect data regarding patient demographics, surgical risk factors, implanted devices, complication rates, and subjective outcome measures related to these orthopedic procedures and store these data in a practical and secure hosted technology platform.
The Pacific Business Group on Health and the California HealthCare Foundation engaged Sujansky & Associates to develop the functional requirements for the CJRR platform and to oversee the technical development and deployment of the platform.
Analyzing and documenting the functional requirements for the CJRR hosted technology, including its data-collection mechanisms, information model, reporting capabilities,
and security features.
Designing the standardized file formats to collect data from participating health care organizations and providing technical support to these organizations as they developed the processes to populate the files from their legacy data stores.
Developing a Request-for-Proposal to identify and retain the software vendor that would build and operate the CJRR technology platform.
Reviewing the selected vendor's software design and acceptance-testing the solution delivered by the vendor.
Overseeing a pilot implementation of the CJRR that involved three provider sites over a three-month period, and evaluating the results and lessons learned from the pilot period.
Functional Requirements for the California Joint Replacement Registry (PDF)
More information about this project is available at www.caljrr.org
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The California Joint Replacement Registry will be the first regional
level-3 registry in the United States. Level-3 registries include objective and subjective information about patient outcomes, as well as the surgical procedures, preceding risk factors, and implanted devices associated with those outcomes.
Data collection for the CJRR relies on a combination of modalities, including the submission of formatted data files, the completion of web-based surveys, and the automated reading of faxed/scanned paper forms.
The CJRR's security model sequesters patient-specific data in a protected repository that is not exposed to the internet, while enabling participating organizations to access aggregated and de-identified reports via an online data mart.
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